How to Eat Safely With G6PD Deficiency
All of my life I have been told by doctors that G6PD Deficiency is no big deal. They told me it was a very rare genetic disorder and if I would avoid a few drugs, moth balls and fava beans, I would be fine.
Have you been told this by your doctor?
For most of my life, I believed them. I had no reason not to. I thought I was healthy and had no medical problems that I knew about. I even bragged about having beat G6PD Deficiency. Then when I reached my forties, my world turned upside down.
My health got progressively worse. Every doctor I went to told me the same thing. There was nothing wrong with me, I would live a long time but I would be in pain for the rest of my life. They had no idea what was causing me to lose feeling in my hands and feet and they assured me it had nothing to do with G6PD Deficiency. Not only was I losing feeling, I suffered from horrible, sharp, stabbing pains in my feet. The debilitating pain drove me to find what was causing it. It took me twenty years, but in 2007 I found the answer.
It isn’t the doctors fault. They are just parroting what they were taught in medical school.
Doctors are taught that G6PD Deficiency is an X linked “recessive” genetic disorder. This is from the Genetics Home Reference – a service of the U.S. National Library of Medicine.
“This condition is inherited in an X-linked recessive pattern. The gene associated with this condition is located on the X chromosome, which is one of the two sex chromosomes. In males (who have only one X chromosome), one altered copy of the gene in each cell is sufficient to cause the condition. In females (who have two X chromosomes), a mutation would have to occur in both copies of the gene to cause the disorder. Because it is unlikely that females will have two altered copies of this gene, males are affected by X-linked recessive disorders much more frequently than females.”
This was proven wrong back in 1962 by Dr. Beutler and Dr. Lyon. See the following:
More men than women have G6PD Deficiency. Statistically, this is impossible since men can only get G6PD Deficiency from their mother and women can get it from either parent, it would stand to reason that more women would have it than men. The actual ratio is 5.5 women to every 4 men.
There are many other myths taught in medical schools about G6PD Deficiency.
Do I recommend that you avoid doctors?
No, I do not. Doctors are an important part of health care. But that doesn’t mean you can’t take responsibility for your own health issues and understand that doctors do not know all the answers. In today’s world, a lack of understanding about G6PD Deficiency can be disastrous. A true story:
“A doctor ingested a common drug and hemolyzed. He went to the hospital for a blood transfusion to counteract the anemia and a rare complication called TRALI occurred which cost him his life. He was posthumously diagnosed with G6PD Deficiency. Had he known, he would not have ingested the medication and would have lived.”
Knowing the truth about what to avoid is critical.
Another true story.
“In 2008 I was diagnosed with a bone infection in my foot and had to have surgery to remove part of the bone. I saw a doctor who actually listened to me. In fact, he had me teach his nurses and the medical staff at the hospital about G6PD Deficiency. He gave me veto power over all food and drugs I was to be given at the hospital which I exercised. I even had my son bring most of my food from home. After the surgery and six months of very high powered intravenous antibiotics administered daily, my blood count was actually better than it was when I was admitted to the hospital.”
It can be done if you know what to do. Doctors and patients can work together with amazing results.
Creating G6PDDeficiency.org changed me forever.
After I discovered the truth about what was causing PN, I created G6PDDeficiency.org in 2007. My education about G6PD Deficiency accelerated. People from all over the world began contacting me with their G6PD Deficiency related problems and questions.
I discovered that there are a lot of other people with serious problems caused by G6PD Deficiency. Here are some of the things I learned from doing research and from talking with other people.
Men aren’t the only ones affected by G6PD Deficiency. In fact, there are more women affected by G6PD Deficiency than men.
G6PD Deficiency can contribute to a lot of other medical problems. Heart, spleen, eye, liver, diabetes, renal and others.
It is common for people to go for years without knowing they have G6PD Deficiency or, even if they know they have it, to believe they are asymptomatic or have grown out of it.
G6PD Deficiency is commonly misdiagnosed as many other diseases.
Most doctors know very little about G6PD Deficiency and much of what they think they know is actually incorrect.
G6PD Deficiency complicates many aspects of a person’s life, either for good or bad.
Women are difficult to diagnose as having G6PD Deficiency and their symptoms are generally less than a man’s. But long range problems are usually worse than a man’s.
A large percent of babies born with jaundice or who develop jaundice shortly after birth are G6PD Deficient. G6PD Deficiency caused jaundice is responsible for many children who have Kernicterus (brain damage from jaundice).
The Good News
The old adage “knowledge is power” applies double to G6PD Deficiency. The main consequence of G6PD Deficiency is that when a person ingests, or in some cases, even comes into contact with a substance that causes oxidative stress (a trigger), red blood cells die (hemolysis) which in turn causes hemolytic anemia.
The “secret” to controlling G6PD Deficiency
The “secret” is really quite simple. Learning how to avoid triggers, what triggers to avoid and how to help the body make more red blood cells and clean up the dead ones. It really is as simple as that. The hard part is knowing what to avoid and how to help your body repair itself. What makes this so hard is that there are so many myths circulating through the internet and even in the medical community that learning the truth is quite difficult.
One of the things that has helped me put it all together is that my family has known about G6PD Deficiency for generations, though we didn’t know it by that name. We called it the family blood disease. We were even involved in some of the research about G6PD Deficiency. Back then we called it Familial Congenital Non-spherocytic Hemolytic Anemia Glucose 6 Phosphate Dehydrogenase Deficiency. What a mouth full, especially for a kid. I had to memorize that name. We knew that taking iron was very dangerous. We knew that jaundice was a dangerous consequence of G6PD Deficiency. But we didn’t know all of the triggers, unfortunately.
Does it work?
Good question. I’m glad you asked. 🙂 My website gets over 250,000 visits a year, not including social media. My books are the best selling books about G6PD Deficiency in the world. Here’s a few comments from some of the people who live by my concepts. These are only a sample of the many comments made about my program throughout the years.
Yes, it works.
Many people have come to me desperate to find the cause of hemolysis when doctors have failed. So far I have been able to help 100% of them which makes all the work and time worth it. I get email and questions from social media every day about G6PD Deficiency.
Can I guarantee that you will never have a G6PD Deficiency related reaction?
I wish I could, but that is not possible. Reactions can be caused by other things besides food, drugs and chemicals. Infections and even stress can cause hemolysis. The best I can do is help you avoid many of the known causes of G6PD Deficiency reactions and teach you what to do to help your body recover from them. By doing this your body can be healthier and more able to bounce back when you do react to a trigger.
I have written a couple of books, a website, maintain social media and answer email and phone questions to help you do this. I want you to be healthy.
This program is not intended to diagnose, treat or cure any disease. If you are seeing a doctor or taking medications, continue to do so and consult with your physician before starting any new eating or nutrition program or changing your medication regimen. We do believe in this program and stand behind our guarantee 100%, but we are never going to be aware of all the conditions or complications that may exist in an individual patient. Our program is not supervised by doctors or nurses. None of the statements on this website or within the program have been evaluated by the FDA or any other agency of any government.
How to Eat Safely With G6PD Deficiency was last modified: February 26th, 2014 by